The HSE has approved the only treatment on the market for spinal muscular atrophy, a genetic condition that affects the nerves in the spinal cord. The green light for Spinraza follows a lengthy campaign by patients and their families. | https://bit.ly/2R7o7gs | RTÉ News
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Scarlet got her 4th loading dose of Spinraza today at the Michigan Institute for Neurological Disorders in Farmington Hills, MI. Hospitals tell me they haven't begun administering Spinraza partly because of the "complexity" of injecting it. Scarlet has now had 4 intrathecal injections without anesthesia and with absoutely no complications or side effects. To contact The Michigan Institute for Neurological Disorders Spinraza Hotline: (248) 553-6220 | Stephen Clark Singer/Songwriter
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